Gerard’s cardiomyopathy was successfully treated as a result of a second opinion

Before I had my surgery, I was quite restricted in what I could do, and I couldn't really exert myself in any major or minor way, actually. I would get asthma like symptoms and difficulty breathing. I would get out of breath, literally, sometimes getting out of the car. I was diagnosed with hypotropic cardiomyopathy here in Ireland, but wasn't offered any treatment other than some drug treatment. Which I really found very ineffective then in kind of frustration with that situation. I did what people say you shouldn't do. I went home, and I Googled where is the world's center for HCM, the Center of Excellence. And came across the Mayo Clinic, and that was the beginning of the journey, really. From my first consultations and meeting with Mr. Kenneally, it became very clear. He was very curious. He wanted to understand his diagnosis, and he wanted to explore options of definitive treatment. I remember when he went to the Mayo Clinic in London and had testing done there and met with doctors there. Within a day, he was able to tell us really what they found was going on, and he was finally being seen in a way that they also were acknowledging, yes, something is not right here. I'm very, very proud of having all cardiac imaging service in hand. And comparing to other places, you may have all the results within one single day here, whereas it could take several months elsewhere. They were quite quick to actually identify why I had the symptoms I had due to an abstruction in the blood flow on my heart. My team in CV International first heard about this patient when we got a request from our London group. Once we do, we figure out which appropriate physician would be best. Like many patients that enter the clinic now, the first meeting was by videoconference. That was set up through the Mayo Clinic office in London. For patients that have limiting symptoms that don't respond to medical treatment who remain limited as Mr. Kenneally was. The options then are going ahead with what we call septal reduction. It's open heart surgery in the usual sense done through an incision in the front of the chest.

The reason for surgery in a patient with hypertrophic cardiomyopathy is to improve their symptoms because you can actually get a patient back to a relatively normal life once the outflow tract obstruction is relieved. They understood the symptoms and what I was going through with it, and were confident that there was something that they could do to improve my condition. Then I was in the hands of the people who- do this particular surgery more than anywhere else in the world and have a fantastic success rate with it. When we first arrived for our appointments in the Mayo Clinic in Rochester, it's very organized where you need to be and what's going to happen, when it's going to happen. The efficiency of the setup is incredible. So all my appointments were on the app. We showed up on time. We were seen on time. We moved around, super professional, super friendly, couldn't have been better. During the operation, we remove muscle from beneath the aortic valve to relieve that obstruction, and that's effective in relieving symptoms in 95% of patients. It's been seven or eight months now since the surgery, and yeah, I'm feeling much, much, much better. Don't suffer any of the symptoms I had previously. I'm able to do almost anything I would like to do, actually. I'm very grateful for the outcome, and I was very fortunate to meet the people I met along the journey. Each year, we see over 1million of patients from 140 countries. The biggest privilege working here is the opportunity of working together- with specialists in the US in a collaborative way of solving a medical problem has been really touching to see that we offered him the second chance to regain his quality of life.

I would recommend the Mayo Clinic to others because I feel they specialize in certain things, and they do a lot of it. So they're good at it. They're at the forefront of anything that's different or new or difficult. There's hope. The needs of the patient come first is a value that Mayo holds in the highest regard. We want to make your experience at Mayo Clinic as seamless as possible to get you here to get you the help that you need. I think if you're in the UK and you want a second opinion, the Mayo Clinic office in London, it's absolutely the best place to go because the person has access to all of the expertise over 4,000 specialists. So when you get a consultation in London, you're not getting just that person's experience, but you'll get the shared experience of the larger Mayo Clinic system.